Bye bye baby girl

Sick Kids called to ask if they could help and sent a taxi with a proscription and the pharmacy sent a new pump which CCAC nurse Sandra came to set up with Pamela. Sasha slept, we lay with her, padded about the house, did some cleaning and gardening. Marcia and Henry visited and sat with Sash and then we sang Sasha Baa Baa Black Sheep and touched her brow to close her eye, she's an open eye sleeper. She breathed five times quickly and I kissed her and walked into the hall and Lorna called me immediately. She was not breathing; I kissed her brow and told her everything was ok beautiful girl. About 20 seconds later she exhaled deeply and left us peacefully at 6.20pm, Tuesday June 20, 2006. Dr Goldman took out the PICC and we changed her diaper, put on a beautiful pink dress and lay with her until the funeral service came and I carried her out wrapped in her blanket to the wagon. Sasha fought for a month, to be at home after 5 monthes in hospital, when the bleeding had taken all her energy she left us in 14 hours. You are free sweet baby girl! Thanks for what you gave us Sasha, you are always a part of our family, the Alagille family and the health care family that you touched deeply.


  1. Anonymous9:16 PM

    This precious little girl will live on in your hearts and minds and in all those lovely videos that you have shown.

    God took Sasha back and gave you Mia so the pain would not be too great.

    You are such courageous parents and have taught many people lessons about love.

    Sasha Bella was an angelic creature sent to teach a special family and even though it is heartbreaking she is happy at play and rest in the heavens again!

    Bye, bye, baby girl from all of us on earth.

  2. Anonymous1:45 PM

    Jonathan, Pamela & Mia,

    I have thought of you all daily since we met back in May for me to capture images of your little peach at home on her first day. Her blog has allowed me to remain connected to you at times when I felt it was inappropriate to connect by phone, email or other. It has allowed me, and many others, the chance to peek in and see how you are, to feel with you, to hurt with you, and to heal with you.

    I met Sasha only for a few hours when I came to your home to photograph her, and yet she touched me so deeply. The power of that one little spirit is so broad, so far-reaching.

    It has been my pleasure to get to know you and your family, and I hope that the images that were captured of you and Sasha in her last days will be a source of comfort for you in the days to come.

    Welcome to Mia - the most fortunate little girl on earth to have such a wonderful guardian angel shining down on her, keeping her safe and smiling.

    My thoughts and prayers are with you during this most difficult time.


    Heather Rivlin