Ian Brown & Dr Chris Feudtner discuss staff-parent partnership for children with complex chronic conditions at Sickkids

"Partnering Leadership in the Care of Children with Complex Chronic Conditions"

Ian Brown & Chris Feudtner, MD PhD MPH

October 8th, 2008, 9:00am – 10:00am EST

SickKids Main Auditorium (The Hollywood Theatre)

How can we improve the medical care provided to children with complex chronic conditions and their families, especially when we have to make major decisions in the face of uncertainty? This presentation considers the role that partnering leadership, between parents and health care professionals, can play in answering this important question.

Ian Brown is a renowned reporter who authored of a series of articles in The Global and Mail recounting his experiences of his son, Walker, who has a rare genetic disease; an expanded version of these articles will appear in a forthcoming book, The Boy in the Moon. He is also currently the host on TVOntario of Human Edge and The View from Here.

Chris Feudtner, MD, PhD, MPH, is assistant professor of pediatrics at The University of Pennsylvania School of Medicine and attending physician and director of research for the Pediatric Advanced Care Team (PACT) and the Integrated Care Service (ICS) at The Children’s Hospital of Philadelphia (CHOP). In these roles, Dr. Feudtner both provides care to children with complex chronic conditions and investigates ways to improve the quality of life for these children and their families. He has also the Director of the new Department of Medical Ethics at CHOP.

Learning Objectives:

1. Define the role that partnering leadership can play in guiding and improving complex care.
2. Recognize how uncertainty and emotion influence decision making
3. Describe 5 simple methods to enhance partnering leadership

Grand Rounds sponsors: Sickkids, Sickkids Palliative Care, Tele-Health

1 comment:

  1. Anonymous11:16 PM

    Jonathan my dear, I have to say it's absolutely wonderful that you're involved in an initiative to get parents charting! That is such a brilliant idea that as I read it I was teeming with excitement! I look forward to updates on the wonderful project

    Just a note of warning...[name removed] is completely and utterly insane. If you want to be taken seriously as a professional and a parent advocate you would do well to rid yourself of such company. Being a parent advocate is a tricky balance - push too hard and people judge you, don't push enough and people don't listen. [name removed] is a clear example of what happens when you scream bloody murder and continue to do so until people won't touch you with a 10 foot pole because they're afraid that you're going to sue. Being afraid of parents makes it hard to treat their children.