e-Patient Connections (U.S) and Education Day for Healthcare Communicators (Toronto)

A new seven minute video summing up the 2009 e-Patient Connections Conference is a fast paced intro to patients engaging other patients and health care providers, in this case face to face, but typically from their computers using social media and blogs to present their personal stories and points of view and articulated needs while they conduct research, chat and network.



"KruResearch — March 24, 2010 — A health care revolution is underway. But it's not being driven by a breakthrough drug or policies coming out of Washington, DC. It's being led by empowered patients who are seeking information, sharing data, and selecting their own treatments more than ever before. At e-Patient Connections, a diverse community of health communicators and marketers gathered to explore innovative ways to reach and engage today's digital health consumers."

KruResearch Youtube channel has more videos from the 2009 conference.

The Toronto Academic Health Science Network's Education Day for Healthcare Communicators held on April 30, 2010 featured health care professional communicators including Lee Aase, manager of Syndication and Social Media for Mayo Clinic's patient, family and staff blog and medical and scientific news blog and Louise Kinross, communications manager at Bloorview Kids Rehab and producer of BLOOM, a magazine on parenting children with disabilities that includes a blog, website and monthly e-newsletter.

SickKids paediatric resident Niraj Mistry presented Web 2.0 at Work: Building Healthy Hospital Policy, a collaboration with Shelley Romoff of Public Affairs, Arlette Lefebvre of Psychiatry and Janice Campbell of Quality and Risk Management.

Scotland pioneers national patient safety program

"NHS Scotland is the first health service in the world to adopt a national approach to improving patient safety" via the Scottish Patient Safety Alliance with the Institute for Healthcare Improvement serving as technical lead. In particular have a look at Resources and the extensive Toolkit.

Redefining Patient Centred Care: What Does It Really Mean? June 17, 2010

In an age when Ontarians can access extensive health information at a keystroke, patients and their families are  increasingly advocating for themselves. Accordingly, pressure is growing upon hospitals, physicians and other clinicians to be increasingly transparent and collaborative.

Some physicians are reluctant to give patients greater control, and at the same time, some patients are accustomed to being deferential to their health care provider, and many are not aware of their legal rights in this connection. Against this backdrop is evidence that patient centred care can improve patient outcomes and reduce costs.

Conference Objectives

By the end of the conference, participates will be able to:
• Recognize what patient centred care really means
• Identify human and institutional barriers to patient centred care in Ontario
• Acquire up to date information on current policies and law regarding patient centred care in Ontario
• Consider how to start implementing patient centred care in their organization
• Physicians: recognize whether implementation of patient centred care is going to impact your practice

An application has been submitted and is currently under review by the Canadian Association of Physical Medicine and Rehabilitation to have this event approved as an Accredited Group Learning Activity (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada.

Members of The College of Family Physicians of Canada may claim Mainpro-M2 credits for this unaccredited
educational program.

Funding may be available for Ontario RNs from the Nurse Education Initiative, which is funded by the Ontario Ministry of Health and Long-Term Care. For additional details, call 1-866-464-4405 or educationfunding@rnao.org


AGENDA:

8:30am Registration and Continental Breakfast

9:00am Welcoming Remarks and Conference Overview

Chair: Wayne Mills
President
Challenging Leaders Limited
Leader
Person Centered Health International Action Group - 1 million acts of Person Centered Health

9:05am Patient Stories

• Stories about journeys through the health care system

Learning objective: evaluate a patient’s perspective on the benefits of disclosing health care information to patients on an unprecedented level

e-Patient Dave deBronkart
The Voice of Patient Engagement

9:40am The History of “Patient Centred Care” Notion

• How and when it all started
• Definition
• The current landscape
• The benefits of cultural change to “person-centred care”

Learning objective: analyze the current multiple definitions of patient centred care

Dr. Vaughan Glover
CEO & Founder
Canadian Association for People-Centred Health (CAPCH)

10:25am Networking Refreshment Break

10:45am Barriers to Achieving Person Centred Health care

Disclosure of Information

• Not everyone agrees with disclosure of patient records
• Not everyone agrees on how much should be disclosed
• Not everyone agrees on patients being key voices in decision-making about their care
• Join the debate for and against disclosure

Learning objective: analyze all points of view on whether disclosure of patient records would benefit the delivery of health care

Moderator TBA

Policies

• Do policies need to change or is everything needed in place right now?
• Is it possible to affect the journey through more effective government policies for the individual health rights?
• Who owns the patient record by law?
• Where does this fit into the Canadian Bill of Rights?
• The new proposed bill, “Excellent Care for All Act, 2010” - what would be the impact on Patient Centred Care?

Learning objective: comprehend the policies in place today

Adalsteinn Brown
Assistant Deputy Minister - Health System Strategy Division
Ministry of Health and Long Term Care

11:35am Engaging Physicians in Patient-Centered Health

Learning objectives: list 3 paradigm shifts in medical practice that set the stage for patient-centered health; explain how physicians benefit from this shift in practice
Daniel Z. Sands, MD, MPH
Cisco Internet Business Solutions Group
Harvard Medical School
Society for Participatory Medicine (Boston)

12:15pm Networking Luncheon

1:00pm Success Stories of Implementation of Person Centred Model in Another Province

Learning objective: evaluate the work that has been done at Capital Health around person centred care

Chris Power
President & CEO
Capital Health

1:40pm Success Stories of Implementation of Person Centred Model in Ontario

Living Patient-Centred Care Values with Patients in the Lung Transplant Program: What it Really Means

Learning objective: measure the work that has been done at UHN around person centred care

Nikki Marks
Nurse Practitioner
UHN Multi-Organ Transplant Program

Jane Hollett
Patient-Centred Care Project Manager
UHN

Sue Stuart
Patient

2:10pm Networking Refreshment Break

2:20pm Person Centred Model - How/Where to Start Implementation in Your Organization?

Learning objective: review the process of implementation of a person centered model

Dr. Judith Belle Brown
Professor
Chair Master of Clinical Science and PhD Programs in Family
Medicine
Centre for Studies in Family Medicine
Department of Family Medicine
Schulich School of Medicine & Dentistry
The University of Western Ontario
Primary Health Care System (PHCS) Program, System Integration & Innovation Research Network (SIIReN)

3:00pm Patient Centred Care: The Patient Perspective

Learning objective: distinguish the patient’s perspective on patient centred care

Dr. Sholom Glouberman
Associate Scientist , Kunin-Lunenfeld Applied Research Unit
Baycrest
Philosopher in Residence
Baycrest Centre for Geriatric Care
Adjunct Assistant Professor, Department of Health Policy
Management & Evaluation, Faculty of Medicine
University of Toronto
Adjunct Professor, Desautels Faculty of Management
McGill University
President
Patients’ Association of Canada

3:35pm The Need for Change!
Learning objective: assess the benefits of cultural change to patient centred care

Elinor Caplan
Former Ontario Minister of Health

4:00pm Wrap Up & Adjournment for the Day

e-Patient Dave deBronkart is in Toronto June 17 for OHA PCC symposium

Dave's keynote is appropriately The Voice of Patient Engagement as he has come to symbolize patient partnership and advocasy. On Twitter over 3000 people follow his posts and the latest post on his blog asks for opportunities to speak and offers some great testimonials.

“Your content was great, your slides most impressive, and your delivery spectacular. I have no doubt – there are many in the room who are in a different place now because of you.” Jim Conway, MD

“e-Patient Dave gave the best keynote I have heard in years at the ICSI conference in the Twin Cities. If you want to learn and cry, book him.” Kent Bottles, MD

My Sister's Keeper

When we saw the trailer for My Sister's Keeper, Pamela and I looked at each other with wide eyes, not saying thumbs up or down so much as OMG. Over the last few days I have watched it several times and found it extremely moving and can only imagine how a parent or sibling might feel. Here are some of the quotes that made me want to reach for a pencil. The movie is transcribed here without all the names but those who have seen the movie will likely place these moments.

up in space you got all these souls flying around...looking for bodies to live in.

I'd like to suggest something completely off the record.

It was our fault. We went against nature and this was our comeuppance.

Do you hold her down, or do I?
Don't be dramatic.
You gonna take her ankles, I'll take her wrists? She's not a baby. You just can't trick her.

I know I'm going to die now.

I'm sorry I took all the attention when you were the one who needed it the most. Dad, I know I took your first love from you. I only hope that one day, you get her back.

I'm real sorry.
Don't be. There's no shame in dying.

Hi, how are you?
Good, how are you?
I'm good, thank you.
Have you spoken to the Make-A-Wish people?
What is this? What is this, the "quality of life" speech?
Mrs. Fitzgerald, you might want to consider taking Kate home.
No.
Making her comfortable......managing her pain.
No hospices. What? You think we should take Kate home to die?
What do you want me to say, Sara? It's an option. Look, I know you don't listen to anybody, but it's our job to tell you. Death is a normal process of life. You need to acknowledge that.
No, I don't. Who is this broad?

He has scars on his hands...from graft-versus-host. I could feel them when we were holding hands.
Was that weird?
It was kind of like we matched.

I'm behind you, no matter what. I'll do whatever, and I do. I'm just not sure
you're seeing the big picture.
What big picture, Kel? Spit it out.
I know it's important for you to feel like you never gave up. I mean, who are you if you're not this crazy bitch mother fighting for her kid's life, right? But there's, like, a whole world out there. You don't see any of it, nothing. Sooner or later, you... You gotta stop. You gotta let go.
I can't.

Um, how do I do this? I mean, just get her up and walk her out of here, or?
Discharge her for the day. The insurance company will definitely not approve this...
...so we'll have to re-admit through emergency. But if she happened to be there at,
let's say, 7:00... I just might be there to meet her.
Okay.
It's one day. Kate's been through the wringer, so if it's not gonna make her any worse...I say take the kid to the beach.

Kate's dying and everybody knows it. You just love her so much that you don't want to let her go. But it's time, Mom. Kate's ready.
That's not true. Kate would have told me.
Mom, she did tell you. She told you a million times. You didn't wanna hear it.

Mom's gonna chop me and cut me...till I'm a vegetable.

My sister died that night. I wish I could say that she made some miracle recovery...
...but she didn't. She just stopped breathing. And I wish I could tell you that there was some good that came out of it... that through Kate's death we could all go on living. Or even that her life had some special meaning... like they named a park after her, or a street... ...or that the Supreme Court changed a law because of her. But none of that happened. She's just gone... a little piece of blue sky now. And we all have to move on.

I'll never understand why Kate had to die and we all got to live. There's no reason for it, I guess. Death's just death, nobody understands it. Once upon a time...I thought I was put on Earth to save my sister. And in the end, I couldn't do it. I realize now...that wasn't the point. The point was, I had a sister. She was fantastic. One day, I'm sure I'll see her again. But until then... our relationship continues.

Patients and Primary Health Care Providers Working Together to Enhance Patient-Centred Primary Health Care : Moira Stewart

Patients and Primary Health Care Providers Working Together to Enhance Patient-Centred Primary Health Care

Moira Stewart, PhD
Director and Professor
Centre for Studies in Family Medicine
University of Western Ontario

Wednesday, 2 June 2010, 3:10 – 4:30 pm
Room 100a, Jackman Humanities Building
170 St. George Street
(across the street from the St. George subway station)

Abstract:
Patient-centred Primary Health Care has been defined as a method of patients and primary health care providers working together.

The overarching principles are: sharing power in the relationship; and making connection at the emotional level. There are six interacting components of patient-centred care: exploring both the disease and the illness experience; understanding the whole person; finding common ground; incorporating prevention and health promotion; enhancing the patient-doctor relationship; and being realistic.

When patients and primary health care providers experience patient-centred care there are a number of benefits to the patient (satisfaction and health outcomes); the provider; and the system (more efficient use of health system resources). Case examples will illustrate the concepts presented.

Admission Free - No Registration Required

Safe Patient Centred Care - Save Your Money!

We heard a sobering statistic from Mary Jo last month: SickKids costs will rise by 6 percent next year - the hospital budget will rise 1.5%.

How do we square this circle? Discovery patents? Sure. Consulting services for hospitals and programs in Doha and Ghana? Why not. But what about a paediatric hospital's reason for being - how do we save money by doing even better at helping more kids?

Let's borrow a familiar foreign bank's refrain and invest in ... a culture of transparent patient safety and family partnership that saves millions with fewer days in hospital, fewer proceedures and less litigation.
"You work hard. You havent taken chances. You've done everything right. And still you feel the pinch. Not sure what to do? Stick to the fundamentals. Grow your ... FAMILY-CENTERED CARE."

"Saving money is like the weather. Everyone talks about it. But you should save for a rainy day. But how? Invest it. Put it into ... PATIENT SAFETY PROGRAMS."

Saving lives is no laughing matter. Reductions in infections, wrong site surgery and a host of other factors have saved lives and reduced time in hospital. There is increasingly evidence that confronting mistakes reduces litigation and future mishaps. How can we get even more creative and do more?