A Family’s Perspective of the Vital Importance of Ethics and Patient-Centred Care

First Annual Sue MacRae Lecture On Ethics and Patient-Centred Care
“Making Tough Decisions Together: A Family’s Perspective of the Vital Importance of Ethics and Patient-Centred Care”
Barbara Farlow BEngSci, MBA
Member of Patients for Patient Safety Canada

Wednesday, 11 June 2008, 4:10 – 5:00 pm
University of Toronto Joint Centre for Bioethics
88 College St., Great Hall

Abstract: Following the tragic death of a loved one, a family seeks healing by struggling to define ethics and patient centred care and by attempting to understand why there seemed to be an absence of both in their circumstance. The lecture is an account of a journey of trying to affect improvements in ethics and patient-centred care, especially in situations pertaining to end-of-life and quality-of-life valuations.

Webcast - click on June 11 2008 lecture (my browser had issues loading)


  1. Anonymous7:36 AM

    family centered care should focus on the family not 1 member of the family....i feel so sorry, how can i make such a big mistake....3times!

  2. Anonymous12:13 AM

    its so irritating to me that jonathan is so involved in all these projects as sick kids while he has 2 daughters at home who should be at the center of his care and they aren't! its ridiculous.
    grieving takes on many forms. its very difficult to grieve with someone, especially when there is so much hurt and anger.
    sasha's care was not perfect but we did the best we could. jonathan and i worked very differently in hospital. i would go with my instinct and he would seek guidance from the experts. this difference created a big gap in her care. i think many parents would rather allow the experts do their work and hope they know what they are doing.
    i think more resources should be available to parents to help them deal with a sick kid. rather than being probed by social workers and nurses, there should be real counselling for parents. i think from the moment sasha was born, i began to grieve. all my dreams of being a mother disappeared as my focus changed to managing her health. that was my life for so long and i want to keep it in the past. i have 2 beautiful daughters who need me to help them thru life and i have never felt more alone in my life. i feel grateful and so blessed to have such beautiful girls and my partner is so lost in his grief that he can't recognize all the beauty in his life. this makes me so, so sad that i have to raise these girls alone.

    i hope jonathan will find his way back to where his family is at the center of his care.

  3. Anonymous1:01 AM

    i can't wait until its over!