Celebrating Sasha and supporting SickKids patient and family centred interprofessional care, staff and family partnership, patient safety, palliative care and Alagille Syndrome. Thanks to family for love and visits, laid back Dr Michael Peer, Dr Jennifer Russell's tireless coordination of LFHC, GI, CCCU, Gen Surg and IGT, all the staff at Hospital for Sick Children and Max and Beatrice Wolfe Centre and final homebound team Stephen Jenkinson, Dr Russell Goldman and TCCAC.
Vomits
The last two nights Sasha has vomited a brown mushroomy smelling vomit. She did this before we left as well. And her fistula is not emitting. We are not sure what to make of it, nor is Dr Goldman. Her waist ballooned from the mid 50 cms to over 60 cm and seems to have subsided back to 59.5cm.
We always worry when the fistula output drops that we covered it when we put on her plastic ostomy bag and the eakin seal putty.
On a happier note, here is a picture of Sasha's first real bath in 5 months. Yeah Sasha!
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