A 2007 Canadian study estimates that between 5% and 12% of dying children and their families receive specialized palliative care and counselling from a dedicated palliative care program. There is also no consistent followup by the health care system with families after the child's death. To help remedy this reality, Kim Widger, one of the above study researchers, has begun research to develop a survey that can be sent to every family who experiences the death of a child so the health care system can improve palliative care and support. Kim's study has been supported by the Innovation Fund Into Palliative Care Research that the Sasha Bella Fund contributes to. If you know a family whose child has died, who might want to share their experience, whether they were supported by palliative care services or not, we would be very grateful if you can forward them the detailed research description and call for family participation which includes Kim's contact information. The focus group interviews will be held in Toronto and Hamilton over the coming weeks.
To participate or ask any questions about the study please contact Kim Widger at 416-
978-2859 or by email at kim.widgerATutoronto.ca
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