Sasha Bella Stein Blumberg Forever 2143124

Celebrating Sasha and supporting SickKids patient and family centred interprofessional care, staff and family partnership and advisory, patient safety, palliative care, Alagille Syndrome. Thanks to our family for the love and visits, paediatrician Dr Michael Peer, Dr Jennifer Russell who coordinated Heart Centre, GI, CCCU, Gen Surg and IGT; medical and allied professional staff at Hospital for Sick Children; Max and Beatrice Wolfe Centre, Stephen Jenkinson, Dr Russell Goldman, TCCAC.

Sickkids Interprofessional Practise Award in Paediatric Hospice Palliative Care 2008

Tuesday, November 18, 2008

The 2008 award was presented to the Outpatient Metabolics Team in the Division of Clinical and Metabolics Genetics. The team comprises Dr. Julian Raiman, Dr. Annette Feigenbaum, Dr. Andreas Schulze, Dr. Joe Clarke, Dawn Cordeiro RN, Lindsay Lockyer RN, Doreen Anderson RN, Patty Martinez SW, Helen Phillips RD, Valerie Austin RD, Kara Hitchman GC, Margaret Mackrell RN. Congratulations to each of you on your outstanding interprofessional support of families.

The team were given a paediatric palliative care textbook for their library and individual copies of Getting to Maybe and Living Dying: A Guide for Adults Supporting Grieving Children and Teenagers (Ceilidh Eaton Russell, Max and Beatrice Wolfe Centre for Children's Grief and Palliative Care). The team, in the important tradition of care for the caregiver will go together for treatment and lunch at the Elmwood Spa near Sickkids Hospital. This award was supported by the Sickkids family funds Melanie's Transition Group, The Paige Berry Memorial Fund, The Mitchell Duckman Fund and The Sasha Bella Fund for Family-Centred Care.

Here is video of the award ceremony at Sickkids Hospital Interprofessional Practise Symposium on November 18, 2008 presented by advanced practise nurse Maria Rugg who has provided palliative and bereavement services to Sickkids families for almost 20 years. (apologies to Maria for the poor visibility in the video)

1 comments:

Sonica said...: This is a wonderful opinion. The things mentioned are unanimous and needs to be appreciated by everyone.

Day Care Centres; 2:54 AM

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The Sasha Bella Forever blog began in 2006 as a tribute to our first daughter and her caregivers as we brought her home from the hospital to die. Expecting just a few days together, we had five incredible weeks. These posts celebrate the life of children with complex care needs and their families and staff partners in care. The posts also share the work of The Sasha Bella Fund For Family Centered Care at SickKids Foundation across the spectrum of care, education and research. From Sasha's experience, the fund and blog focuses on partnership, inter-professional and inter-disciplinary teamwork, palliative and end of life care, patient safety, care for the care-givers, patient and family advisory, peer support and the special challenge of the ICU. Please share, or Like or comment if you are moved by a particular post or think of The Sasha Bella Fund during your charitable giving.
Regards,
Jonathan Blumberg (Sasha's dad)

The Sasha Bella Fund For Family-Centred Care
SickKids Foundation
Laurel Shillingford
525 University Avenue, 14th Floor
Toronto, Ontario, M5G 2L3
Tel. 416 813 7588 or 1 800 661 1083
Charitable # 10808 4419 RR0001

The Fund supports family-centered interprofessional care, family advisory, patient safety and palliative care with low cost initiatives like awards, small grants to programs and research, website initiatives, murals, sharing our story and volunteering at the hospital. See a list of fund projects and please consider donating securely online at Sasha's SickKids Foundation page (a tax receipt is emailed immediately) or by calling Laurel at SickKids Foundation.

All donations to a directed family fund like the Sasha Bella Fund For Family-Centred Care goes to projects at SickKids Hospital with no Foundation overhead.

What is family-centered care? Frank Gavin offered a great definition in the 2005 Family Advisory Council report:

"Family-centred paediatric care is an ideal, an attainable goal, an approach to organizing care, and a set of specific practices. At its root it recognizes the child-patient as first of all, and at all times, a member of a particular family. It therefore regards the family’s involvement in planning, providing, and evaluating the child’s care as not only desirable but necessary. Real family centred care values and accommodates the family’s love and its expertise. In the end, it allows the child, wherever he or she may be, to be always at home.”

Thanks to all the almost 1000 families who have helped SickKids through The Sasha Bella Fund since 2006 and who in October 2009 helped raise $20,000 for Sickkids Hospital and Bloorview Kids Rehab. Special thanks to the performers who donated their special skills, Sho Mo + The Monkey Bunch, Charlie and Little Fingers, Deb Maes, Bloorview therapeutic clowns and Master Choung Taekwondo club, and The Stockyards, Ravisoups and Mildred Pierce for an incredible lunch. Checkout pictures of the 2009 Fun Day by Peter Fenyevesi and Bryan McBurney.

"After much research and exploration and talking with people at the Sick Kids Foundation we have found the Fund that I think addresses the same goals and priorities that Diane and I have for helping to affect change at SickKids. It's called the Sasha Bella Fund and it's named after a beautiful little girl named Sasha Bella Stein-Blumberg. Her parents set up the Fund after she passed away in June 2006. They do great work, particularly in encouraging family-centred care in the intensive units of Sick Kids ... encouraging family centred practice on the general units, advancing palliative care and support for parents and promoting interprofessional education. It's a fund and a cause we are proud to support and we encourage everyone to take a closer look." Janis Purdy and Diane Flacks