
Special thanks to Treasa Levasseur for her energy and commitment and Caron Mills of Sickkids Childlife Service for her expert stickhandling pulling this program together in a few short months.
Celebrating Sasha and Sick Kids Hospital family-centred interprofessional care, parent collaboration, peer support & advisory, palliative care, Alagille Syndrome and good death. Thanks to Bubby, Granny, Gramps & family for the love & visits; Jennifer Russell who coordinated Heart Centre, GI, CCCU, Gen Surg, IGT; Palliative; Max & Beatrice Wolfe Centre, Stephen Jenkinson, Russell Goldman, TCCAC; Michael Peer, David Chitayat; all the nurses!

This blog is a tribute to Sasha and to all parents who learn their baby has serious organ complications and have to decide how, when and if to intervene. Sasha was one little miracle who touched many people over her short 744 days and who we love and honour through The Sasha Bella Fund (see below). This blog remembers, grieves and celebrates her story to shine a small light and hope to help other families and SickKids Hospital navigate the complexities of family-centred care a large care setting. The blog begins on our return home, expecting Sasha's imminent death, and records our time together over five weeks at home and then recounts our journey after her soul took flight and her sister Mia was born 11 hours later followed recently by her sister Eve.
1 comments:
oh this made me smile! Great work.
Post a Comment