Celebrating Sasha and supporting SickKids patient and family centred interprofessional care, staff and family partnership, patient safety, palliative care and Alagille Syndrome. Thanks to family for love and visits, laid back Dr Michael Peer, Dr Jennifer Russell's tireless coordination of LFHC, GI, CCCU, Gen Surg and IGT, all the staff at Hospital for Sick Children and Max and Beatrice Wolfe Centre and final homebound team Stephen Jenkinson, Dr Russell Goldman and TCCAC.
Pillow Angel: freezing growth
When I first read about Ashley I could only respect the incredibly difficult situation she and her parents were in. Aside from the sympathetic overviews of the ethics and critiques of the parents choices and the incredible respect for the care they put into explaining about Ashley on their blog I thought of a fragment of a conversation we had during one of Sasha's clinic visits as we waited in her cardiologist's office: if only she didn't grow anymore she wouldnt need more cardiac surgeries.
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what a horrifying story.
ReplyDeletemay god forgive these parents for their selfishness.
in response to anonymous post at 11:49pm
ReplyDeleteIt never astounds me that some people can be so judgemental when they haven't walked in the same shoes. may god forgive you for your ignorance.
ethics are not based on a case by case basis.
ReplyDeletei am sorry you are offended, but i actually have been in these shoes.
what is to stop anyone from dismembering a person like this to make their lives easier?
at what cost? how far do we go to keep a person alive so that we can feel attached to them?
god forgive these parents.