tag:blogger.com,1999:blog-28260938.post5647379886654952769..comments2024-02-27T04:19:15.998-05:00Comments on Sasha Bella Stein Blumberg Forever 2143124: In defence of passionate parentsSasha Bella Foreverhttp://www.blogger.com/profile/16636793036498517524noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-28260938.post-64698813499759007752008-10-13T14:24:00.000-04:002008-10-13T14:24:00.000-04:00Thanks for sharing your fears in the ICU specifica...Thanks for sharing your fears in the ICU specifically about asking questions and your wish that staff had initiated a discussion about the possibility of death. There certainly is much to learn from open communication that will help children and make challenging staff and parent work a little easier. Thanks for your contribution and your support!Sasha Bella Foreverhttps://www.blogger.com/profile/16636793036498517524noreply@blogger.comtag:blogger.com,1999:blog-28260938.post-44744153611703794652008-10-12T23:32:00.000-04:002008-10-12T23:32:00.000-04:00Thanks for this thoughtful post Jonathan.There is ...Thanks for this thoughtful post Jonathan.<BR/><BR/>There is so much to learn from each other by communicating. When my complex child was in the hospital, I didn't know what was happening and it was terrifying. I was afraid to ask questions, especially related to the big picture or the overall plan because I was afraid of receiving bad news. I was afraid of bad news because I was afraid of death. I wish that someone had initiated a discussion on death because I was too afraid to. I am certain of the good intentions of the staff, but I am not sure anyone understood how it was for me, as a parent. Everyone was very kind but there was no communication about plans and options.<BR/>Thank you for the work you are doing.Anonymousnoreply@blogger.com